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Health Care Directory > Condition Specific Information > Crohn's Disease and IBD Information and Resources

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Crohn's Disease and IBD Information and Resources


This is an edited Crohns Disease and IBD list of hand information and resources.



Crohn's-Colitis Support Newsgroup (through Google Newsgroups)   


David's Crohn's & Colitis Web site   

A fun, informative site by someone who can relate, because he has ulcerative colitis.

Eating for Irritable Bowel Syndrome (IBS) Diet & Recipes   

Comprehensive Irritable Bowel Syndrome (IBS) diet information & hundreds of IBS-friendly recipes.

Irritable Bowel Home Test   

Learn why your have irritable bowel syndrome symptoms, ulcerative colitis or upset stomach and then our pracitioner will help you find relief. (food intolerances, yeast, parasites, worms, leaky gut..)

My Life with Crohn's Disease   

A site produced by someone who knows what it is like to live with Crohn's disease, and how he copes on a daily basis.

Ostomy Support Newsgroup (through Google Newsgroups)   


Centerwatch (Clinical Trials Listing Service)   

This site features an international listing of clinical research trials. Trials are searchable by treatment area and by geographical location.

Certifying Board of Gastroenterology Nurses and Associates, Inc. (CBGNA)   

Complete listing of certification courses, handbooks and exams. 3525 Ellicott Mills Drive, Suite N Ellicott City, MD 21043-4547 Tel: 410-418-4808 Fax: 410-418-4805

CHID   

Database containing hundreds of citations referencing many different diseases.

Colitis Cookbook   

Offers a list of recipies and other information that should be helpful to the colitis sufferer. Crohn's

Colitis Crohn Foreningen (CCF)   

Birkegade 11 2200 Københaven N Tel: + 45-35-35-48-82 Fax: + 45-35-35-47-82 E-mail:

Communications Med.ca   


Crohn en Colitis Ulcerosa Vereniging Nederland (CCUVN)   

Wilhelminastraat 45 3621 VG Breukelen Tel: + 31 (0)346 26 10 01 Fax: + 31 (0)346 26 49 74 E-mail: ccuvn79@hetnet.nl New Zealand

Crohn en Colitis Ulcerosa Vereniging vzw (CCV)   

Schalmei 2 2970'S-Gravenwezel Tel: + 32 (0)3 385 27 19 Fax: + 32 (0)3 383 52 14 E-mail:

Crohn's & Colitis Support Group   

P.O. Box 24-171 Royal Oak, Auckland Phone: (09) 636-7228 Fax: (09) 636-7242 E-mail:

Crohn's and Colitis Association in Finland   

(Crohn ja colitis ry) P.O. Box 44 - FIN-02101 Espoo Tel: + 358 (0)9 148 5784 Fax: + 358 (0)3 241 2561 E-mail:

Crohn's and Colitis Foundation of Canada (CCFC)   

60 St. Clair Avenue East Suite 600 Toronto, Ontario M4T 1N5 Tel: 416-920-5035 E-mail:

Crohn's Disease Resource Center   

A nice site for people with Crohn's disease, including book excerpts and a message board.

Crohn´s og Colitis Ulcerosa samtökin á Íslandi   

P.o. Box. 5388 125 Reykjavik Iceland Tel: 416-920-5035 E-mail:

Deutsche Morbus Crohn/Colitis Ulcerosa Vereinigung (DCCV e.V.)   

Parcelsusstrasse 15 51375 Leverkusen 1 Tel: + 49 (0)214 87608-0 Fax: + 49 (0)214 87608-88 E-mail:

Disease/Ulcerative Colitis Home Page   

Provides links to an extensive list of information sources on the Internet.

European Federation of Crohn's and Ulcerative Colitis Associations   


Federazione Nazionale delle Associazione per le Malattie InflammatorieCroniche dell'Intestino (AMICI)   

Via Adolfo Wildt 19/4 20138 Milano Tel: + 39 (0)2 28 93 637 Fax: + 39 (0)2 268 22 670 E-mail:

Grupo Andaluz para el Estudio de la Enfermedad Inflamatoria Intestinal   


Grupo Español de Trabajo de Enfermedad de Crohn y Colitis Ulcerosa (GETECCU)   


http://ccfa.org/medinfo/medinfo/amicimail@geocities.com   

Luxembourg

IBD Sucks   

An extensive discussion board for people with IBD. Topics range from alternative remedies to mental health issues, and everything in between!

International Foundation for Functional Gastrointestinal Disorders (IFFGD)   

P.O. Box 17864 Milwaukee, WI 53217 (414) 964-1799 or (888) 964-2001 Provides support and education information for people affected by functional bowel disorders, including irritable bowel syndrome (IBS).

International Organization of Inflammatory Bowel Disease (IOIBD)   


International Ostomy Association   

c/o British Colostomy Association 15 Station Road, Reading, Berks. RG1 1LG England Australia

Intestine City   

Web site done by a person with Crohn's disease. Full of resources for other people with IBD. Chat rooms, message boards, and a "pen-pal" page are just some of the features of this site.

Irish Society for Colitis & Crohn's Disease (ISCC)   

Carmichael Centre North Brunswick Street Dublin - 7 Tel: + 353 (0)1 872 14 16 Fax: + 353 (0)1 873 57 37 Israel The Israel Foundation for Crohn's Disease and Ulcerative Colitis P.O. Box 5231 Herzlia Fax: 09-9567628 Italy

iVillage.com Message Boards   

This site, geared towards women, provides a message board to discuss Crohn's disease.

The J-Pouch Group   

A site dedicated to discussing Ileo-anal anastomosis or what's known as the "J-Pouch" operation.

Johns Hopkins Gastroenterology and Hepatology Resource Center   

Site includes information on causes, therapies, complications, and research.

Laboratory of Experimental Internal Medicine   

The following site has information in French for Physicians: Offre de l'informationaux médecins en français:

Landsforeningen Mot Fordøyelsessykdommer (LMF)   

c/o FFO, Smågruppesekretariatet Postboks 4568 Torshov 0404 Oslo Tel: + 47 88 00 50 21 Fax: + 47 88 00 50 31 E-mail:

Los Folletos Educativos en Español   

The following Web site also contains information in Dutch: Bevat informatie in het Nederlands:

MedMark: Medical Bookmarks   

A resource for Web sites, divided up by disease category.

Medscape Gastroenterology   


National Association for Colitis & Crohn's Disease (NACC)   

4 Beaumont House Sutton Road St. Albans, Herts. AL1 5HH Tel. administration: + 44 (0) 1727 83 00 38 Tel. information: + 44 (0) 1727 84 42 96 FAX: + 44 (0)1727 86 25 50 E-mail:

National Digestive Disease Information Clearinghouse   

2 Information Way Bethesda, MD 20892-3570 Phone: (301) 654-3810

National Institute of Diabetes & Digestive & Kidney Diseases   

9000 Rockville Pike Bethesda, MD Phone: (301) 496-3583 The division of the National Institutes of Health (NIH) that provides government funding for digestive disease research.

National Organization For Rare Disorders   

P.O. Box 8923 New Fairfield, CT 06812-8923 Phone: (203) 746-6518

New England Journal of Medicine   


Office of Rare Diseases   

The Rare Diseases Office at the National Institutes of Health, featuring scientific activities, a genetic and rare diseases information center, and a portal to databases that provide information on major topics of interest in rare diseases research.

The Oley Foundation, Inc.   

214 Hun Memorial, A-23 Albany Medical Center Albany, NY 12208-3478 Phone: (800) 776-OLEY A source for educational materials on home parenteral and enteral nutrition. Oley also provides support and networking to patients.

Ostomy Association of Boston   

Phone: (508) 270-4600 (Boston area) (800) 952-7664 (Outside of Boston)

Physician's Guide to the Internet   

A resource to help physicians find their way around the Web.

Riksförbundet för Mag-och Tarmsjuka (RMT)   

Gotlandsgaten 46, PO Box 20054 104 60, Stockholm Tel: + 46 (0)8 642 42 00 Fax: + 46 (0)8 642 11 00 E-mail:

Schweizerische Morbus Crohn/Colitis Ulcerosa Vereinigung (SMCCV)   

Postfach 5001 Aarau Tel: + 41 (0)62 824 87 07 Fax: + 41 (0)62 824 87 07 Alternate Web site:

Science News   


The Society for Surgery of The Alimentary Tract   

900 Cummings Center #221-U Beverly, MA 01915 Phone: (978) 927-8330 Fax: (978) 524-8890

Society of Gastroenterology Nurses and Associates, Inc.   

401 North Michigan Avenue Chicago, IL 60611-4267 E-mail: sgna@sba.com

Society of Laporoendoscopic Surgeons (SLS)   

7330 SW 62nd Place Suite 410 Miami, FL 33143 (800) 446-2659 Discusses laparoscopic and endoscoscopic surgery. Includes a member search function to help find a laparoscopic or endoscopic surgeon in your area.

Österreichische Morbus Crohn/Colitis Ulcerosa Vereinigung (ÖMCCV)   

Obere Augartenstrasse 26-28 A-1020 Wien Tel.: + 43 (0)1 333 06 33 E-mail:

Teens With Crohn's Disease Page   

Stories, advice, and recipes!

Tufts University Nutrition Navigator   

An online rating and review guide to help Web users find nutritional information best suited to their needs. Links to various nutritional resources; includes a section on special dietary needs.

United Ostomy Association, Inc. (UOA)   

36 Executive Park Suite 120 Irvine, CA 92714-6744 Phone: (800) 826-0826

Worm Research   

This is a study, being done in Iowa, that is investigating the possible usage of worms in helping to cure IBD.

Yahoo Groups listing for Crohn's and colitis lists   


American Autoimmune Related Diseases Association, Inc.   

Complete resource for patients and physicians, focusing on Autoimmune diseases. Includes legislative information.

American Board of Medical Specialties (ABMS)   

1007 Church Street Suite 404 Evanston, IL 60201 (847) 491-9091 The web site discusses the purpose of the ABMS. To find out if an individual physician or surgeon is board-certified, call (800) 776-2378.

American Chronic Pain Association (ACPA)   

PO Box 850 Rocklin, CA 95677 (916) 632-0922 The ACPA seeks to provide a support system for those suffering with chronic pain through education and self-help group activities.

American College of Gastroenterology   

4900 B South 31st Street Arlington, VA 22206-1656 (703) 820-7400 You can call this professional society to request information or pamphlets. Tap into the "Digest This!" section of their site for "Understanding Your GI Tract" and "Digestive Health Tips."

American College of Surgeons (ACS)   

55 East Erie Street Chicago, IL 60611 Office of Public Information (312) 664-4050, ext. 391 The web site describes the ACS, and also lists pamphlets you can order by phone, including "Patient's Choices," "What is Laporoscopic Surgery?" and a four-part series, "When You Need an Operation."

Americans with Disabilities Act Page   

This page is part of the U.S. Department of Justice Web site, and features information on settlement and mediation programs.

Annie's Crohn's Disease Web Page   


Asociación de Enfermos de Crohn y Colitis Ulcerosa (ACCU)   

C/ Hileras 4, 4o, 6 y 7 28013 Madrid Tel/Fax: + 34 (91) 542 63 26 E-mail:

Association François Aupetit (AFA)   

Hôpital Rothschild 33, Boulevard de Picpus 75571 Paris - Cedex 12 Tel: + 33 1 40 19 99 19 Fax: + 33 1 40 19 34 36 Germany

Association Luxembourgeoise de la Maladie de Crohn (ALMC)   

B.P. 648 2016 Luxembourg Tel: + 352 50 98 28 Fax: + 352 47 98 20 20 The Netherlands

Australia Crohn's & Colitis Association   

P.O. Box 201 Mooroolbark, Victoria 3138 Tel: (03) 726 9008

Australian Crohn's & Colitis Association (Queensland)   

P O Box 548 Maleny QLD 4552 Tel: (07) 5494 2149 South Australian Crohn's & Colitis Association P.O. Box 3153 Grenfell Street Adelaide, SA 500 Austria

Cedars-Sinai Inflammatory Bowel Disease Center   

The Cedars-Sinai IBD Center Web site, geared mostly toward research.

Celiac Sprue Association/USA, Inc.   

P.O. Box 31700 Omaha, NE 68131-0700 Phone: (402) 558-0600

Celiac Support Page   

A site designed to offer support for people with Celiac Disease.


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