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Health Care Directory > Condition Specific Information > Crohn's Disease and IBD Information and Resources Crohn's Disease and IBD Information and Resources
David's Crohn's & Colitis Web site
A fun, informative site by someone who can relate, because he has ulcerative colitis.
Eating for Irritable Bowel Syndrome (IBS) Diet & Recipes
Comprehensive Irritable Bowel Syndrome (IBS) diet information & hundreds of IBS-friendly recipes.
Irritable Bowel Home Test
Learn why your have irritable bowel syndrome symptoms, ulcerative colitis or upset stomach and then our pracitioner will help you find relief. (food intolerances, yeast, parasites, worms, leaky gut..)
My Life with Crohn's Disease
A site produced by someone who knows what it is like to live with Crohn's disease, and how he copes on a daily basis.
Centerwatch (Clinical Trials Listing Service)
This site features an international listing of clinical research trials. Trials are searchable by treatment area and by geographical location.
Certifying Board of Gastroenterology Nurses and Associates, Inc. (CBGNA)
Complete listing of certification courses, handbooks and exams.
3525 Ellicott Mills Drive, Suite N
Ellicott City, MD 21043-4547
Tel: 410-418-4808
Fax: 410-418-4805
CHID
Database containing hundreds of citations referencing many different diseases.
Colitis Cookbook
Offers a list of recipies and other information that should be helpful to the colitis sufferer.
Crohn's
Colitis Crohn Foreningen (CCF)
Birkegade 11
2200 Københaven N
Tel: + 45-35-35-48-82
Fax: + 45-35-35-47-82
E-mail:
Crohn en Colitis Ulcerosa Vereniging Nederland (CCUVN)
Wilhelminastraat 45
3621 VG Breukelen
Tel: + 31 (0)346 26 10 01
Fax: + 31 (0)346 26 49 74
E-mail: ccuvn79@hetnet.nl
New Zealand
Crohn en Colitis Ulcerosa Vereniging vzw (CCV)
Schalmei 2
2970'S-Gravenwezel
Tel: + 32 (0)3 385 27 19
Fax: + 32 (0)3 383 52 14
E-mail:
Crohn's & Colitis Support Group
P.O. Box 24-171
Royal Oak, Auckland
Phone: (09) 636-7228
Fax: (09) 636-7242
E-mail:
Crohn's and Colitis Association in Finland
(Crohn ja colitis ry)
P.O. Box 44 - FIN-02101 Espoo
Tel: + 358 (0)9 148 5784
Fax: + 358 (0)3 241 2561
E-mail:
Crohn's and Colitis Foundation of Canada (CCFC)
60 St. Clair Avenue East
Suite 600
Toronto, Ontario M4T 1N5
Tel: 416-920-5035
E-mail:
Crohn's Disease Resource Center
A nice site for people with Crohn's disease, including book excerpts and a message board.
Crohn´s og Colitis Ulcerosa samtökin á Íslandi
P.o. Box. 5388
125 Reykjavik Iceland
Tel: 416-920-5035
E-mail:
Deutsche Morbus Crohn/Colitis Ulcerosa Vereinigung (DCCV e.V.)
Parcelsusstrasse 15
51375 Leverkusen 1
Tel: + 49 (0)214 87608-0
Fax: + 49 (0)214 87608-88
E-mail:
Disease/Ulcerative Colitis Home Page
Provides links to an extensive list of information sources on the Internet.
Federazione Nazionale delle Associazione per le Malattie InflammatorieCroniche dell'Intestino (AMICI)
Via Adolfo Wildt 19/4
20138 Milano
Tel: + 39 (0)2 28 93 637
Fax: + 39 (0)2 268 22 670
E-mail:
IBD Sucks
An extensive discussion board for people with IBD. Topics range from alternative remedies to mental health issues, and everything in between!
International Foundation for Functional Gastrointestinal Disorders (IFFGD)
P.O. Box 17864
Milwaukee, WI 53217
(414) 964-1799 or (888) 964-2001
Provides support and education information for people affected by functional bowel disorders, including irritable bowel syndrome (IBS).
International Ostomy Association
c/o British Colostomy Association
15 Station Road, Reading, Berks. RG1 1LG
England
Australia
Intestine City
Web site done by a person with Crohn's disease. Full of resources for other people with IBD. Chat rooms, message boards, and a "pen-pal" page are just some of the features of this site.
Irish Society for Colitis & Crohn's Disease (ISCC)
Carmichael Centre
North Brunswick Street
Dublin - 7
Tel: + 353 (0)1 872 14 16
Fax: + 353 (0)1 873 57 37
Israel
The Israel Foundation for Crohn's Disease and Ulcerative Colitis
P.O. Box 5231
Herzlia
Fax: 09-9567628
Italy
iVillage.com Message Boards
This site, geared towards women, provides a message board to discuss Crohn's disease.
The J-Pouch Group
A site dedicated to discussing Ileo-anal anastomosis or what's known as the "J-Pouch" operation.
Johns Hopkins Gastroenterology and Hepatology Resource Center
Site includes information on causes, therapies, complications, and research.
Laboratory of Experimental Internal Medicine
The following site has information in French for Physicians:
Offre de l'informationaux médecins en français:
Landsforeningen Mot Fordøyelsessykdommer (LMF)
c/o FFO, Smågruppesekretariatet
Postboks 4568 Torshov
0404 Oslo
Tel: + 47 88 00 50 21
Fax: + 47 88 00 50 31
E-mail:
Los Folletos Educativos en Español
The following Web site also contains information in Dutch:
Bevat informatie in het Nederlands:
MedMark: Medical Bookmarks
A resource for Web sites, divided up by disease category.
National Association for Colitis & Crohn's Disease (NACC)
4 Beaumont House
Sutton Road
St. Albans, Herts. AL1 5HH
Tel. administration: + 44 (0) 1727 83 00 38
Tel. information: + 44 (0) 1727 84 42 96
FAX: + 44 (0)1727 86 25 50
E-mail:
National Digestive Disease Information Clearinghouse
2 Information Way
Bethesda, MD 20892-3570
Phone: (301) 654-3810
National Institute of Diabetes & Digestive & Kidney Diseases
9000 Rockville Pike
Bethesda, MD
Phone: (301) 496-3583
The division of the National Institutes of Health (NIH) that provides government funding for digestive disease research.
National Organization For Rare Disorders
P.O. Box 8923
New Fairfield, CT 06812-8923
Phone: (203) 746-6518
Office of Rare Diseases
The Rare Diseases Office at the National Institutes of Health, featuring scientific activities, a genetic and rare diseases information center, and a portal to databases that provide information on major topics of interest in rare diseases research.
The Oley Foundation, Inc.
214 Hun Memorial, A-23
Albany Medical Center
Albany, NY 12208-3478
Phone: (800) 776-OLEY
A source for educational materials on home parenteral and enteral nutrition. Oley also provides support and networking to patients.
Ostomy Association of Boston
Phone: (508) 270-4600 (Boston area)
(800) 952-7664 (Outside of Boston)
Physician's Guide to the Internet
A resource to help physicians find their way around the Web.
Riksförbundet för Mag-och Tarmsjuka (RMT)
Gotlandsgaten 46, PO Box 20054
104 60, Stockholm
Tel: + 46 (0)8 642 42 00
Fax: + 46 (0)8 642 11 00
E-mail:
Schweizerische Morbus Crohn/Colitis Ulcerosa Vereinigung (SMCCV)
Postfach
5001 Aarau
Tel: + 41 (0)62 824 87 07
Fax: + 41 (0)62 824 87 07
Alternate Web site:
The Society for Surgery of The Alimentary Tract
900 Cummings Center
#221-U
Beverly, MA 01915
Phone: (978) 927-8330
Fax: (978) 524-8890
Society of Gastroenterology Nurses and Associates, Inc.
401 North Michigan Avenue
Chicago, IL 60611-4267
E-mail: sgna@sba.com
Society of Laporoendoscopic Surgeons (SLS)
7330 SW 62nd Place
Suite 410
Miami, FL 33143
(800) 446-2659
Discusses laparoscopic and endoscoscopic surgery. Includes a member search function to help find a laparoscopic or endoscopic surgeon in your area.
Österreichische Morbus Crohn/Colitis Ulcerosa Vereinigung (ÖMCCV)
Obere Augartenstrasse 26-28
A-1020 Wien
Tel.: + 43 (0)1 333 06 33
E-mail:
Teens With Crohn's Disease Page
Stories, advice, and recipes!
Tufts University Nutrition Navigator
An online rating and review guide to help Web users find nutritional information best suited to their needs. Links to various nutritional resources; includes a section on special dietary needs.
United Ostomy Association, Inc. (UOA)
36 Executive Park
Suite 120
Irvine, CA 92714-6744
Phone: (800) 826-0826
Worm Research
This is a study, being done in Iowa, that is investigating the possible usage of worms in helping to cure IBD.
American Autoimmune Related Diseases Association, Inc.
Complete resource for patients and physicians, focusing on Autoimmune diseases. Includes legislative information.
American Board of Medical Specialties (ABMS)
1007 Church Street
Suite 404
Evanston, IL 60201
(847) 491-9091
The web site discusses the purpose of the ABMS. To find out if an individual physician or surgeon is board-certified, call (800) 776-2378.
American Chronic Pain Association (ACPA)
PO Box 850
Rocklin, CA 95677
(916) 632-0922
The ACPA seeks to provide a support system for those suffering with chronic pain through education and self-help group activities.
American College of Gastroenterology
4900 B South 31st Street
Arlington, VA 22206-1656
(703) 820-7400
You can call this professional society to request information or pamphlets. Tap into the "Digest This!" section of their site for "Understanding Your GI Tract" and "Digestive Health Tips."
American College of Surgeons (ACS)
55 East Erie Street
Chicago, IL 60611
Office of Public Information
(312) 664-4050, ext. 391
The web site describes the ACS, and also lists pamphlets you can order by phone, including "Patient's Choices," "What is Laporoscopic Surgery?" and a four-part series, "When You Need an Operation."
Americans with Disabilities Act Page
This page is part of the U.S. Department of Justice Web site, and features information on settlement and mediation programs.
Asociación de Enfermos de Crohn y Colitis Ulcerosa (ACCU)
C/ Hileras 4, 4o, 6 y 7
28013 Madrid
Tel/Fax: + 34 (91) 542 63 26
E-mail:
Association François Aupetit (AFA)
Hôpital Rothschild
33, Boulevard de Picpus
75571 Paris - Cedex 12
Tel: + 33 1 40 19 99 19
Fax: + 33 1 40 19 34 36
Germany
Association Luxembourgeoise de la Maladie de Crohn (ALMC)
B.P. 648
2016 Luxembourg
Tel: + 352 50 98 28
Fax: + 352 47 98 20 20
The Netherlands
Australia Crohn's & Colitis Association
P.O. Box 201
Mooroolbark, Victoria 3138
Tel: (03) 726 9008
Australian Crohn's & Colitis Association (Queensland)
P O Box 548
Maleny QLD 4552
Tel: (07) 5494 2149
South Australian Crohn's & Colitis Association
P.O. Box 3153
Grenfell Street
Adelaide, SA 500
Austria
Cedars-Sinai Inflammatory Bowel Disease Center
The Cedars-Sinai IBD Center Web site, geared mostly toward research.
Celiac Sprue Association/USA, Inc.
P.O. Box 31700
Omaha, NE 68131-0700
Phone: (402) 558-0600
Celiac Support Page
A site designed to offer support for people with Celiac Disease.
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